Pompe Warrior Foundation

THE INFORMATION AND MATERIALS CONTAINED ON THIS WEBSITE (CONTENT) ARE FOR INFORMATIONAL PURPOSES ONLY AND DO NOT CONSTITUTE MEDICAL ADVICE; THE CONTENT IS NOT INTENDED TO BE A SUBSTITUTE FOR PROFESSIONAL MEDICAL ADVICE, DIAGNOSIS, OR TREATMENT. ALWAYS SEEK THE ADVICE OF A PHYSICIAN OR OTHER QUALIFIED HEALTH PROVIDER WITH ANY QUESTIONS YOU MAY HAVE REGARDING A MEDICAL CONDITION. NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE OR DELAY IN SEEKING IT BECAUSE OF SOMETHING YOU HAVE READ ON THIS WEBSITE.

Throughout this website you will see references to the ketogenic diet. Please be aware that there are many ways to implement a ketogenic diet — not all of which should be considered healthy. The Foundation’s goal is to share the founders’ personal experience using a highly specialized and very closely monitored version of the ketogenic diet as part of the treatment plan for their two-year-old son, Leo. If you or someone you know is battling Pompe disease, or another glycogen storage disease or lysosomal storage disease, we hope that you will find the information provided here useful in discussing the potential for dietary changes with your own doctors and care team as a part of an overall treatment plan.